Who am I?
May 21, 2008 at 12:44 pm | In Everyday stuff | Leave a CommentI’m feel soooo much better. Settled. Calmer. Than I have done in the last few weeks. Things have slowed right down.
But I feel tired and confused. I’m exhausted. And quite low. I don’t feel like I’m shuffling through identities like a pack of cards anymore, shifting from one to another. I just feel vague and unsure. I have no idea who I am.
But I feel better. It’s definately better.
Is everyone else making it up? Trying to appear more cohesive and whole than they are? Are they, half the time, making up the values and beliefs they live from? Do they really care about the same people a lot of the time? Because I could make it up. Easily. I could make it look like they never change. I often have to. Sometimes to avoid grief. And sometimes to keep things in place for when I switch again. But I don’t really think or feel the same at all. But, so what? I’m never really bad or anything. And I can still function okay. And I probably don’t seem all that different unless things are really going pear-shaped.
It’s ok.
In the end.
May 19, 2008 at 4:48 pm | In Everyday stuff | Leave a CommentTags: DID, dissociation, dissociative disorder, dissociative identity disorder, exam deadlines, exams, mental health, mental illness, MPD, multiple personality disorder, student, university
Today I went to make an appointment to see the mental health nurse at University. I’m going to see her tomorrow at 11.30. I think it would be good to chat to a someone about the last couple of weeks. Well three. Only the first week I didn’t feel dissociative, I felt overwhelmed. I took the week off Uni to catch up. I couldn’t cope with the idea of even one more single thought being put in my head without putting some kind of order to the ones that had been crammed in over the preceding weeks. That week was just odd. Then the dissociation kicked in the next week. Out of the blue. I don’t want an opinion. I just want to cover my back. So if it happens again, I don’t have to try and remember what happened this time. Second opinions are good. They stop you feeling dishonest. And worrying what people would think if they knew.
If I struggle loads, I’m wondering whether I may need to consider a different career path. I can’t see that happening to be honest. But I’m a great believer in going with a job that suits you and your skills and resources. And it wouldn’t be the end of my little world. There I go, looking on the bright side again. I like that. It’s me. And I don’t feel much like me very often at the moment. But I would be pissed off if I had to let go of it because of idiot opinions about who can and can’t work in mental health.
But this little bit of my life has been fairly constructive. Not only have I learned loads at Uni. I mean loads. It’s been really really interesting. And this little not-doing-so-well bit has given me food for thought. For one, I’ve come along way over the years. It’s kind of highlighted that. The golden rule years ago was never let anyone know what’s going on for you. Never. At any cost. That took some shaking off. For the last few years, I haven’t lived by that rule anymore. Although I have still felt pretty mortified at times, presuming that people think I’m pathetic or whatever. I just didn’t let it stop me. But I haven’t felt that at all lately. Partly, I don’t believe people will think I’m pathetic. Well, not many of them. And not the ones that are worth taking any notice off. And secondly, what difference does that make at all to me if they do? That’s their problem. And thirdly, some of my very best and favourite people are a little bit pathetic every once in a while. So pathetic ain’t all bad. I do worry slightly about the tutors and what they think. Mainly because they have power to stop me qualifying. Not because I worry about their opinion of me. This whole power thing is a bit shit in mental health to be honest. Having to lie or at least not be open and honest because you can’t trust the system of things to protect your interests equally. I’ve got to go and see the Occupational Health person soon. That’s gonna be crap.
It’s also been a bit of a reminder about what some people have to live with all the time, or a lot of the time. Because you do forget. Even if you try not to. I’m not talking about ’symptoms’. They can be unpleasant, very unpleasant at times. I’m talking about feeling different. And having to be careful with your behaviour and language because it needs to be contained. You know if you don’t contain it, it won’t be socially acceptable. Trying to fit in with what’s expected of you and with the standards you normally live from. When they just aren’t your standards right now. It’s okay but it’s hard work. I’m very lucky I didn’t really get into the system and have all the crap from that on top.
I’ve also made some good friends. Some people who were friends last term have become more important to me. I love them whereas I liked them. Other people who I really didn’t think much of at all last term have become more like friends. I like our group a lot. There’s one person I really like loads. She’ll be a brill mental health nurse. Mostly, we do have a good laugh. I think next year, it might feel a bit more serious as we get into it. I hope the idiots leave. The ones that think people are nutters. The ones that think people should be locked up if they’re hearing voices and forcibly treated. I feel torn about the people that aren’t bright or struggle because English is a second language. No offence, some of them are lovely, but really not grasping anything. And my allegiance is with the people who turn up at services needing help. I’m just not sure some of them could cut it. And people deserve a reasonable level of skill as well as warmth and respect. We’ll see.
I do actually feel like my little old head has stopped the meltdown process. I feel manic. I feel impulsive. I feel like I don’t really need anything from the world. I don’t need people. I don’t need food. I don’t need sleep. But I don’t feel like it’s getting worse. And my head’s quieter. And I’m starting to think about things I want to do when Uni breaks up. I’m going to be creative. I’m going to spend time with a wonderful eight year old I know. I’m going to read bits of stuff I’ve been interested in from the module we’ve just done but not had the time. I might start looking at bits for the next module in a leisurely fashion. Because it is actually interesting. I might write a little of the reflective essay on branch exposure. It doesn’t look difficult really. I’ll probably look up Gibbs and Johns models of reflection and try and follow one of them. Mostly, I’m going to enjoy my days doing what I need to within my resources but with a load of doing what I want to thrown in.
I’ve got a feeling it’s all going to be pretty much fine and dandy.
In the end.
Untitled
May 17, 2008 at 1:11 am | In Everyday stuff | 1 CommentTags: auditory hallucinations, brokenness, depersonalisation, derealisation, dissociation, dissociative disorder, dissociative identity disorder, mental health, mental illness, multiple personality disorder, voices
Why is dissociation so hard to put into words?
All day yesterday and most of today I didn’t feel like I was in my skin. I felt broken but not in any kind of emotionally painful sense. As if my skin had opened and bits of me had fallen out and bits of me were still inside. Broken in that sense. Like a living vase that’s fallen of a shelf. And is in bits on the floor.
Sometimes, that’s how I think of myself. I mean generally. When life’s grand. I think the vase fell (got pushed) off the shelf years and years ago and it got glued back together pretty well. It holds water and it looks okay. It’s generally a pretty happy little vase. Sometimes even kind of proud of its visible joins. But it maybe doesn’t want to sit too near the edge of very high shelves. Unless it doesn’t mind keeping still for a bit while the glue sets. I think there’s a fair few living broken vases around.
But really, that metaphor doesn’t capture dissociation very well. That’s part of it. But dissociation’s more than 3-dimensional. Much more. Yesterday I watched my own hands type stuff I didn’t agree with. That’s a bit wierd. And, if I’m honest, a bit unnerving. It doesn’t worry me in and of itself at all. I just think all human beings are pretty complex and everyone has bits of themselves that are out of sync with their overall identity and values. People dress differently or hang around with a different crowd and different bits of their personality become more prominent. With dissociation, the bits separate out further from the centre in varying degrees. It’s all along the same continuum. It doesn’t bother me that bits are more separate than usual. It bothers me that I might have messes to clear up. I really don’t have the energy. The worst situation ever was when one part called Rachel told the WHOLE WIDE WORLD she was gay. That really wasn’t fun. She was gay. But the other bits of me weren’t.
Most of the time, it was nowhere near that bad. I remember countless times where I would have to endure conversations with people who had spent lots of time with other bits of me and related with me as if I was somebody I didn’t feel I was. I just had to make up reactions and try not to ‘blow it’ for the ‘others’. I had my friends. I didn’t want to lose them theirs.
Yesterday, I know the part that I watched typing was doing the same thing, being careful not to mess things up. I know what they wanted to say because none of me is ever that separate any more. I can hear their thoughts in a similar way to the way I hear my own. Like when I’m sitting in lecture and think ‘must buy bread’. I hear my internal voice. Short, sharp, clear and to the point. I jot down ‘bread’ in the corner of a handout and that’s the end of that. To the best of my knowledge, everyone has a similar thing going on. But what’s been going on in my head over the last couple of days is having other internal voices challenging things I’m thinking. For example, I think ‘must buy bread’ and another thought follows it with ‘i hate bread, what would you want to do that for’. Except the responses are less polite with a lot more swear words. And not mine. The other thing that’s happening is I can ‘hear’ what other bits of me are thinking when I’m trying to write an essay and the room’s nice and quiet. Which takes me back to my original point; when the other part of me was typing, I could ‘hear’ them saying things like ‘I’d better not say that and expressing general frustration about not being able to. And I was thinking ‘thank you’ and ‘i really appreciate it’ and stuff like that.
I’m not talking about auditory hallucinations that sound like they’re outside of you so you turn and look to see who spoke. I had that a few times, only nice reassuring voices, but they still made me jump. No, I’m just talking internal dialogue.
The other thing I’ve felt loads is being so totally overconscious of every inch of my skin. It’s horrible. And time has this wierd quality. I look at the clock. I know what time it is. But it doesn’t mean anything. It’s not really to that degree. But it’s an effort to figure out. And even more difficult to explain.
Too much grey…
May 16, 2008 at 8:34 am | In Everyday stuff | Leave a CommentTags: classification, dissociation, dissociative identity disorders, DSM-IV, ICD-10, kraepelin, madness, multiple personality disorder
Health is a continuum. Mental health is a continuum. Dissociative disorders are a continuum. Nobody’s fully well. Nobody’s completely mentally healthy and everyone dissociates to some degree.
Which leads to the question, at what point does it become a problem?
The art and science of classifying mental health disorders looks at two things: abnormality and distress. Abnormality can be unpacked to consider what is expected within that society and what is unacceptable within that society (i.e. deviance). And there’s something about statistical norms thrown in aswell. Distress is fairly straightforward, kind of the equivalent of physical pain that results from injury, illness and diseases of the body.
As a result of his research, Kraepelin, the guy who decided that all forms of madness had a physical cause, also noticed a couple of other things about the behaviours and ideas of mad people. He noticed that there was some kind of pattern to it all. No one symptom (such as auditory hallucinations) was unique to any one form of madness, but you could separate the forms of madness into groups by the combination of symptoms exhibited and by which ones were the most prominent. This led him to separate out and define both schizophrenia (dementia praecox as he called it) and bipolar affective disorder (manic depression). According to most textbooks, both the ICD-10 (WHO, 1992) and the DSM IV (American Psychiatric Association, 1994) are built on his work.
I’ve been dissociating all over the place over the last couple of weeks. And all this has given me lots of food for thought about the whole classification thing. It’s all very grey, all a bit hit and miss I think. People are just so darn random!
BTW, I do believe in God and I haven’t stopped believing in God! Me and God had a good long chat yesterday as it happens!
Just for the record…
May 15, 2008 at 12:18 pm | In Everyday stuff | Leave a CommentTags: dissociation, dissociative identity disorder, multiple personality disorder, simon and garfunkel
I’m okay today. More okay than I’ve felt for 2 weeks. I feel kind of in my skin. But I’m not back to (my own) normal. I know this because:
I don’t like people much I don’t believe there’s a God I’m listening to Simon and Garfunkel and feeling perculiarly excited all the references to death and suicide I want to write poetry My skin is getting on my nervesIt kind of reminds me off when I had a part called Ice. It wasn’t pretty. But I had breakfast today. It was one of my first thoughts this morning. For the last ten days, I really haven’t felt the need for food. I also don’t feel quite so much like running down the road naked. I’m thinking this is a good thing. I’m also thinking it will be good when exams are over!
General musings on DID recovery
May 15, 2008 at 7:34 am | In Everyday stuff | 2 CommentsTags: DID, dissociation, dissociative identity disorder, flashbacks, integration, mental health, mental illness, MPD, multiple personality disorder, recovery, recovery movement, recovery values, ron coleman
I read an interesting blog entry yesterday. Somebody far braver than me gives her account of recovery from DID on her real live non-anonymous blog. It got me thinking a bit more about recovery and what it is.
Anybody who works (or is studying) in the field of mental health, will have done well not to have come across the recovery movement, recovery philosophy, recovery values, recovery approach or something similar. Other people have taken a long time to put together fairly comprehensive information on the world wide web, both from user/survivor perspectives and from the perspectives of practitioners/helpers so I’m not going to go into it. I really should be writing/finishing an essay on the National Service Framework for Mental Health and social inclusion. This link is okay and has other, better, links from it. It’s rethink, the mental health charity so it’s from a service perspective primarily. I like this one but don’t be put off by the outfit. Ron Coleman has been a key player in the prominence of recovery in recent years. He still scares me though.
But basically, the biomedical model, which has underpinned most aspects of mental health provision in the NHS, views mental health as organic in nature (caused by genetics, neurotransmitters, hormones, infections and as by-products of physical disease). That’s because a very clever german guy called Emil Kreapelin said Freud was wrong. He did a lot of researching and identified that people who had family members who were mad were more likely to become mad themselves. He also did a lot of research on the effects of alcohol on the human system. I’ve done some research myself in that area but I struggled to write it down. By the time I could hold a pen, I couldn’t remember anything any more. Emil Kreapelin was clever. He watched other people get drunk. Not as much fun but infinately more useful for research purposes. He noticed that drunk people and mad people did similar things. So therefore (less clever in my opinion) there must be a physical cause to madness as there is with alcohol-induced arseholic behaviour.
Basically, ever since, we’ve been treating people based on this premise. And for people who it clearly didn’t fit, such as personality ‘disordered’ individuals, and sometimes people with DID/MPD aswell, we didn’t do anything with them at all. Treatment has equated to giving medication. If medication won’t work, they are ‘untreatable’. The goal has been the removal of symptoms (abnormality according to the norms of that particular society or distress on the part of the individual). If treatment was successful, the person was now normal and had stopped crying a lot, then the person had recovered. Oh Joy!
Recovery has another meaning in the current mental health climate. A meaning that no-one really seems to be able to define. I like that. Recovery seems to have more to do with the self, the bit people can’t see. It recognises, in my opinion, some very important principles. Firstly, recovery recognises that coming apart is extremely traumatic. It’s like having the rug pulled from under your feet. It’s disorienting. It’s a shock. Nothing makes sense anymore. People need to recover from that. It recognises that anything related to mental ill-health also carries huge stigma. You grow up with those stigmatised ideas all around you. And then it’s you. In a way, you then have a stigmatised view of yourself. Which tears you apart. You need to resolve that, come to a place of acceptence. It recognises that the mental health system causes people further injury, sometimes with the best of intentions. People lose personal freedoms or they’re threatened (verbally or non-verbally) with the loss of freedom if they don’t comply with a treatment regime thay may not be entirely happy with. You may get a label attached to you that makes it difficult to pursue your chosen career, to adopt children, to get insurance, to travel to America (the last one’s not such a great loss I know). People also need to recover from all this, navigate their way through a world with less opportunities than before.
I could say more but I’m sure you get the point. It’s not always the symptoms that are the problem. It’s all the other shit you get landed with as a result. And just when you could really do without it, in my humble opinion. Recovery says you can find a way to be okay, happy in fact, with or without symptoms. Recovery also says no-one else can tell you whether or not you’ve done it. It isn’t externally measurable.
But, back to my original point related to the nice lady’s blog. People who define recovery according to removal of the symptoms (as she seems to) and people who define it by finding a way to make life okay again with or without symptoms (as I do) are often, when you actually get them together, experiencing very similar things. They’re just framing it differently. Faith’s recovery goal seems to have been integration and no longer using dissociation as a coping strategy. As a result, her life is better, she’s happier. She does still dissociate occasionally but not so much. My goal of therapy was very different. I couldn’t give a shit about integration (if anything, it just felt wrong, like some kind of bizarre role play) or whether or not I still dissociated. I wanted to stop being frightened all the time. I wanted to stop feeling ashamed. I wanted to be able to watch a tv programme all the way through and understand what I’d watched. I wanted to sleep at night. I wanted friends. I wanted some nice stories to tell in company. The only symptom-focussed goal was flashbacks. I wanted the flashbacks to stop. To be honest, that was pretty shit. The voices were fine. The flashbacks not so much. But, at the end of the day, parts of my whole self became less separate and I dissociated less. So me and Faith got very similar outcomes.
Yay me and Faith!
[These posts are so long. Over 1000 words. I feel like I ought to reference them. How come I can't do essays this quick?]
Looking on the bright side…
May 14, 2008 at 6:56 am | In Everyday stuff | Leave a CommentTags: dissociation, dissociative identity disorder, mental health, multiple personality disorder, recovery
Hello Lovely World
First off, this is not a place I’m going to pour my heart and soul out. There are loads of blogs where people do that if you want to know you’re not alone in the darkest hour or you want to get an insight into the suffering that’s part of dissociation, DID, MPD, whatever you want to call it.
I have been there. I know it’s important to get that stuff out. And I know it’s important to find other people in the same boat. It’s a pretty hideous thing to go through alone. I hope you find what you need. I’m sure you will. When I was first diagnosed (actually I knew what was going on a little bit before that), there was one UK site with positive information and a few in the USA. And a million scary sites that said it didn’t exist – or worse. I was soooooo desperate to find little threads of hope wherever I could find them. Apparently, people with DID are on the upper end of the resourceful scale. I do happen to agree with that now. You find what you need or you make do with what you find.
But nowadays I’ve moved on. I don’t have MPD, DID, whatever you want to call it anymore. But I do still dissociate. Not very often in any kind of problematic context, to be fair. And not to such a great degree. I don’t lose awareness of the rest of me. I don’t split off. I don’t wonder what yesterday was about. Or worry that I’ve said or done things that will get me into trouble.
Mostly, my dissociation is a good thing. Because no part of me is really hurting anymore. I just need a day of playing now and again. Or I need a day of talking theology because I want to understand the meaning of the universe. Or I need to be completely alone because I’m not a people person. Or I don’t believe in God and I have to keep my mouth shut. It’s pretty much like anyone else really. But those bits are perhaps more separate to each other than they would be for most people. I’m going to resist the urge to try and justify that statement. It’s just the way it is.
Anyway, life is good. I have friends and family I love and who love me. I have a nice house that I’m very happy and at home in. I have pets I adore. I go on holiday. All the usual stuff. And I’m training to be a mental health nurse. It’s fun being at University, all the more because I didn’t ever think life would be bearable, let alone okay, let alone good, let alone successful. It’s like a big unexpected bonus. And the placement side’s okay. Being a student on placement isn’t easy. But I think that’s the case for pretty much anyone! But the work itself will be fine I think.
The trouble with Uni (and ultimately the reason for this blog) is that when you’re studying, you can’t order life around your resources all that well. You need an evening to play but you have to write an essay. You could do with some prayer from church because there’s deadlines and you need to focus but you just don’t really believe. You need to be alone because people are just an effort but you have to sit with your schoolmates and try to be how you normally are. For HOURS. I think I’m going to come undone a few times. It’s not that bad. I’m undone now. I just have to make the space for it.
I have another blog, a blog where I blog my life, my family, the funny things that happen. But the trouble with blogs is they gradually get a wider audience. My family read it. My friends at Uni read it. People at church read it. Mostly it’s fine. But just now and again I want to say stuff that I don’t want the whole world to read. I don’t want anybody feeling responsible for me or my stress levels. I’m VERY good at taking care of myself. I don’t want relatives the other side of the world who have no clue about anything thinking of me as a wierdo. I don’t want my mum losing sleep. I don’t want my sister knocking the door asking me if I’m okay. The thing is that then I wouldn’t be okay. Who would with all that?
This blog is a place where I can say it’s all a bit much, I’m coming undone or whatever. Because sometimes that’s just how it is. No big crisis. But it’s nice to be able to express it and say the word dissociation. It’s also a place where I can say how surprised, grateful, lucky, I feel about my life now compared to then. A place where I can say I don’t believe in God today. A place where I can say I do.
No names. No photos. All very freeing.
Blog at WordPress.com. | Theme: Pool by Borja Fernandez.
Entries and comments feeds.